About DeafBlind Individuals

When we hear of DeafBlind we usually think of Helen Keller. To be DeafBlind a person has a combination of vision and hearing loss. Functional level may vary from mild to severe. This combination creates such severe communication and other developmental and educational needs that they cannot be accommodated in a special needs programs solely for children with deafness or with blindness.

Does my child qualify? Some questions to ask:

  • Does my child respond to environmental sounds but not to speech?
  • Does my child bump into or trip over objects?
  • Does my child need time to adjust when going from bright light to dim areas?
  • Does my child have difficulty seeing objects unless they have high color contrast?
  • Does my child consistently respond to sounds or visual objects?
  • Does my child have difficulty knowing where sounds are coming from?
  • Does my child have chronic ear or upper respiratory infections?
  • Does my child move it’s head or eyes in unusual positions instead of looking directly at objects?
  • Does my child fail to imitate sounds?
  • Does my child communicate by biting, hitting self or others, screaming or throwing objects?

These are among a few things to watch for if you have concerns please contact your local DeafBlind project. Or to learn more about DeafBlindness visit these sites

Free online school for family and the blind:

Also visit this link:

Dr. van Dijk He held Kodi and sang to him and rocked him. Kodi liked him and warmed up to him. He had wonderful incite for my little man… He’s an expert on DeafBlindness and also CHARGE Syndrome

Another story

This is horrific


Copyright laws apply since November 2012.

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  1. It’s tough to ‘like’ such a post because of its gut-wrenching implications to a sweet little guy like your Kodi. One of my camp friends, Christie, has an autistic son, (not the same, I know). Christie is a real life character in “Memory Lake” and during the reunion scene I mention her autistic son, Brian. Brian’s three siblings were extremely protective of my wording. I sought all their permission before going to print. I learned so much from that experience. The bonds of love within a family of special needs kids is so humbling, and so deep and textured, an outsider like me can barely fathom it. Thank you for blogging about Kodi so we can begin to understand.

    • Thank you for your honesty. I try to portray the reality of it all but I don’t want it to be all dark… We would be very depressed and depress others… I try to show that as tough as it is we still find joy in life and wonderful things… I don’t share all the horrible things because really some you just can’t put in words…
      I have a cousin Bryan who also is autistic… I completely understand… I will try to find time to look at your book… Thanks again so much for reading… I’m trying to figure out how to publish the one book I have done… It takes money I don’t have… 🙂 my hope is to some day take my blogs it published as well… 🙂