This is my 100th post. it means nothing really just a number. I never celebrate anything at all really. So why this? Only because I didn’t know if I’d even stick with it. Only because the readers I meant it for don’t read it… The ones I didn’t know do read it… And I’m not really sure it’s educating anyone on these conditions or even helping. But it is a form of documenting for me. Although the things we don’t want to share we don’t. We still have to keep part of life separate. Anyway I kicked around several ideas. This is what WE came up with. Symone and Colten are co-contributors and well Kodiak of course is our main subject. I hope it’s 100th post worthy.
I’m nervous!!! Hard to check spelling etc on iPhone…
Ok! Whatever! Why worry! It’s just our hearts on the line…
Drumroll please (Colten’s words)
And here it is… TA DAH!!!! (Symone’s words)
Kodiak my sweet little grizzly bear,
My dear sweet precious little heir,
Oh! How I wish you could see,
All My love that I have for thee.
With hugs and warm embrace,
On my heart, it leaves more than a trace.
Although, I know you can sense the swell,
For you give love from your heart back well.
CHARGE Syndrome and DeafBlind,
Scoliosis needing to be aligned.
Heart defect, though not lacking love,
sinus infections, show what your made of.
You have a cute crooked little smile and face,
Crooked neck and head we used to brace.
So many things, deformed and amiss,
But my love for you, forever exists.
You love to toss your all your toys,
I think that is like most little boys.
More! More balloons you preferred
Into a corner, balloons you would herd.
Off to the bathtub like a speed racer,
You’d run with your favorite light chaser.
But water and batteries do not mix,
You’d cry when mother could not fix.
Off the deck, your ruler, you would toss
Back up it would land, like it was boss.
Confused and mystified you’d do it again,
Back it would come, patience grew thin.
Back in house, you’d throw at the wall,
Never knowing your sibs were behind it all.
They’d laugh and giggle and come up to see,
You would be handing the ruler off to me.
Waterparks, roller coasters and wild rides
Wave pools, you love repeated rip tides.
Bumper boats, geysers and wild fountains,
Climbing up to slide, like climbing mountains.
Then relax time on the lazy river,
Until we see you begin to shiver.
We wrap you up and take you to shore,
However, you just keep signing “more”!
When the clock struck well after midnight,
And the moon was full and very bright,
You would sneak down past the gate,
Like you were going on a hot date.
Riding your jeep into the basement wall,
The security alarm, 911 it would call.
We’d open our eyes, to the door we’d run,
To police we’d tell, “it was only our little one”.
Oh! How I wish you could hear,
All my whispers in your ear!
But you don’t at all, it’s not fair,
For really, you only feel the air.
When you do, you freeze in one place,
With my warm breath on your face.
And then you begin to wiggle and giggle,
It only makes sense, as it must tickle.
You now see with your fingers,
as you ponder, your hand lingers.
Since you are now blind, can’t see at all,
It is now so easy for you to fall.
Being DeafBlind is a cruel thing,
Being deaf you can’t talk or sing.
You make lots of noise in the halls,
Papa records to sell animal calls.
Blind cane you maneuver quite well,
Steps and walls you can foretell.
Colors are gone from your eye,
Your memory of color you rely.
My heart becomes a marshmallow,
You no longer do see yer favorite yellow.
The movies with yellow chicks you miss,
It’s the one thing, the TV, you’d kiss!
Off we would go on a long road trip,
Excited you’d be with food and sip.
They reside four hours away,
You do remember and play.
A place you don’t have a handicap,
You have developed a good mental map!
Pick’n flowers and another photo shoot,
Blind – yet you twirl around and scoot.
Nana and Papa all full of cuddles,
Head massage, back rubs and snuggles.
Sweet little treats and horsy rides,
Four wheeler rides down mountain sides.
The visits are short but memories long,
Out would come Papa with guitar and song.
Uncle, Aunt and two cousin girls,
Around you so much love swirls.
Then there is Symone, my firstborn one,
Who you love to tease and pull hair for fun.
She would read and show you the story,
Pending your surgeries, she would worry.
Out of your room past midnight, you’d prance,
To find your big sister, who taught you to dance.
Down the hills in winter they take you sledding,
Inside, covering head in blankets and bedding.
You keep brother Colt up at night,
And sometimes cause quite a fright.
He would awake to find that you were crying,
Comfort and back rub until you were sighing.
You share a room and I must confess,
Between you two, it’s always a mess.
A thing that can make Colt bawl,
It’s you no longer see to catch a ball.
Who needs a weather man to inform,
Your mood changes with impending storm!
Head banging, hitting eyes, causing bruises,
broken bones, cuts where blood oozes.
Man! You are a tenacious little fighter!
Soon though, reality for you is brighter!
Stop! My child, that little lip quiver,
For I, I will always be your caregiver.
Sleep around you is quite rare,
Odd, since you’re a grizzly bear.
Hibernating is not in your blood,
Often RUDLY awaken, by huge thud!
On go bright lights, then giggles,
Next, the louder sounds, and wild wiggles.
One would think we are under attack,
But Alas! In name only, a Kodiak.
Ok! We are done! We may tweak it later or add more as it comes to our brains… Sleep well! My little ones! Sleep well!
Opps! I want to add more… Not from a friend or a foe…
But a kind reader, time away from his little one he spent,
and THIS amazing poem is what he sent:
There is a place where the Grizzlies are different,
They aren’t the scary monsters of film and fiction,
They won’t chase after you until your energy is spent,
They can, and will, lead you through every emotion.
There is a place where the Grizzlies are amazing,
Not for their sharp teeth, deep growls, and massive paws,
Not for their height when on their legs they are standing,
But for how they deal with the hand they’ve been dealt, a deal that is raw.
There is a place where the Grizzlies are wild,
They rage and they scream and they flail,
But one Grizzly isn’t a bear at all, he’s a child,
Blind, deaf, and still blazing a trail.
There is a place where a Grizzly will steal your heart,
He struggles, he grows, he lives, he learns,
And so will you while watching his caretakers play their part,
Raising him to be a member of this world as the days turn.
There is a place where Kodiak is a Grizzly,
Momma bear, sister and brother bear are there as well,
Sometimes their antics are somber and sometimes completely silly,
Where their journey is headed, only time will tell.
There is a place where the Grizzlies go to play,
They go to work, they go on walks, they go to school,
A family of bears with important lessons on life to say,
Won’t you follow them on their journey too?
Amazing! Thank you again! and Thanks so much Everyone for reading! 🙂
Copyright laws do apply since November 2012.